The first steps in this process are described here, including 1 the development of items and domains with the use of qualitative data from stroke survivors and 2 initial reliability, validity, and responsiveness data from the first patient. No stroke specific hrqol measure is currently available. Quality of life assessment in poststroke patients in. A stroke unit that provides acute care and rehabilitation for stroke patients in frederiksborg county, denmark. The sis and ssqol, along with five criterion measuresthe fuglmeyer assessment, the motor activity log, the functional independence measure, the frenchay activities index, and the nottingham. Increased work and social engagement is associated with. Evaluation of the strokespecific qualityoflife ssqol scale in mexico. Evaluation of the strokespecific qualityoflife ssqol. Minimal detectable change and clinically important difference. Items in the american version of the stroke specific quality of life ss. It is more synthetic than the sis, easier to use and understand, with a smaller number of items but a wider range of explored domains as vision, personality and energy domains. The quality of life evaluation will be evaluated through the strokespecific qualityoflife scale developed by williams et al. To test the reliability and validity of the turkish version of the stroke. This project was performed at the shiraz university of medical sciences, shiraz, iran, between 12 april 2010 and 24 february 2011.
However, there has been no chinese hong kong version of the scale. The general and specific quality of life scores were compromised. In this regard, other stroke specific scales, such as the stroke impact scale sis 32 or the stroke specific quality of life scale, ecvi38 33,34 may be useful given their greater sensitivity. Psychometric properties of the stroke specific quality of.
The scale consists of 49 questions grouped into 12 domains. Background and purposeclinical stroke trials are increasingly measuring patientcentered outcomes such as functional status and. The stroke specific quality of life scale ssqol is a patientcentered outcome measure intended to provide an assessment of healthrelated quality of life hrqol specific to patients with stroke. Evaluation of the strokespecific qualityoflife ssqol scale in. The sample consisted of 9 patients, with a mean age of 59. The rating scale is not clear for the client filling out the form. Stroke specific quality of life scale stroke engine. It is therefore necessary to perform an accurate evaluation. There is a relative lack of longitudinal studies investigating stroke specific outcomes and quality of life qol. Please choose the answer that appears most appropriate. Record performance in each category after each subscale exam. Development of a strokespecific quality of life scale stroke. The english version of the ssqol was translated into persian by. Validity, reliability and norwegian adaptation of the.
Strokespecific quality of life ssqol scale, version 2. Validation of the 12item strokespecific quality of life scale in a bi. Test of reliability and validity of the persian version. Background and purposeclinical stroke trials are increasingly measuring patientcentered outcomes such as functional status and healthrelated quality of life hrqol. Mobility, energy, upper extremity function, work and productivity, mood, selfcare, social roles, family roles, vision, language, thinking and personality.
Of the strokespecific scales, the strokespecific quality of life scale ssqol, in addition to the stroke impact scale version 3. Not only does the burden of stroke lie in the high mortality but the high morbidity also results in up to 50% of survivors being chronically disabled. Development and validation of a short version of the. Validation of the stroke specific quality of life scale ssqol. Development of a strokespecific quality of life scale. The strokespecific quality of life scale ssqol developed by williams et al.
A short version of the ssqol was developed and tested here. I will read out each question to you, along with the response options. Measuring the effectiveness of interventions is accepted as being central to good practice. Strokespecific quality of life in stroke rehabilitation. Assessing the strokespecific quality of life for outcome. Quality of life of patients with stroke rehabilitation. Purpose the aim of the present study was to analyze the psychometric properties of the stroke specific quality of life ssqol scale for the assessment of social participation following a stroke. Methods secondary analyses of three different studies. We are currently running a medium scale study 80 participants which aims to explore the hrqol of people with longterm aphasia and to assess the psychometric properties and the acceptability of the stroke specific quality of life scale ssqol williams et al. Validity and reliability of a nigerianyoruba version of. This study presents the initial development of a valid, reliable, and responsive strokespecific quality of life ssqol measure, for use in stroke trials. Wolf motor function test literature search did not reveal new psychometric data available for the following four measures. Construct validity of the strokespecific quality of life.
Validation of the 12item strokespecific quality of life. Background and purpose the stroke specific quality of life scale ssqol is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. We adapted the strokespecific quality of life scale ssqol 9 for use with people with aphasia, producing the stroke and aphasia quality of life scale saqol. Purpose measures stroke specific changes in quality of life for individuals who have had a stroke. Validation of the stroke specific qualityoflife scale in patients with aneurysmal subarachnoid haemorrhage. This page presents the best available information on how outcome measures for stroke might be classified and selected for use, based upon their measurement qualities. Recently, our research group 10, 11 demonstrated that the stroke specific quality of life ssqol scale appears to be the most complete measure for assessing social participation among stroke survivors. However, only 26 of the 49 items on the scale address participation capacity 10. The ssqol assesses healthrelated quality of life specific to stroke survivors. Journal of neurology, neurosurgery, and psychiatry, 81, 485489. Validation of the stroke specific quality of life scale.
Stroke specific quality of life scale internet stroke center. The research covered 80 patients after stroke, treated in the neurology ward of the district specialist hospital. Scores should reflect what the patient does, not what the clinician thinks the patient can do. The domains of diseasespecific hrqol measures are of central concern in terms of treatment goals 8. The strokespecific quality of life scale ssqol was developed in 1999. The following questions ask how you feel about your quality of life, health, or other areas of your life.
Pdf the aim was to assess the reliability and the validity of the translated version of the stroke specific quality of life ssqol questionnaire. Follow directions provided for each exam technique. Thus stroke is a disease of immense public health importance with serious economic and social consequences. To test the reliability and validity of the danish version of the stroke specific quality of life scale version 2. Stroke is ranked as the second leading cause of death worldwide with an annual mortality rate of about 5. The stroke specific quality of life scale is a stroke specific measure of healthrelated quality of life.
Methods a preliminary analysis was performed of the ssqol items that address the participation category. Stroke specific quality of life scale ssqol stroke engine. This study aimed to identify which factors level of disability, cognitive functioning, depressive symptoms, physical activity, and work and social engagement were independently associated with each stroke specific domain of qol, adjusting for age and gender, at 3. Stroke is a leading cause of activity limitation and participation restriction that negatively affect health. The impact of stroke can be devastating, leaving a person with residual effects on physical, social, emotional, and cognitive functions. Instructions for scoring the quality of life scale this form of the quality of life scale qols has 16 items rather than the 15 found in the original flanagan version. Translation and validation of the stroke specific quality.
Pdf development of a strokespecific quality of life scale. The strokespecific quality of life scale ecvi38 is the first spanishlanguage instrument for evaluating the quality of life in individuals who have survived a stroke. Impact scale sis, the stroke specific quality of life scale ssqol and barthel index. This evaluation consists of 49 items that focus on 12 areas of healthrelated quality of life. Among these tools is the strokespecific qualityoflife ssqol scale, which was developed as a comprehensive measure of multiple effects in poststroke patients. It includes 12 domains that cover traditional healthrelated qol topics e.
Each domain is measured by three to six items using a 5point 1. A scale allowing comparisons of quality of life between people with versus without aphasia post stroke would be of value to clinicians. The quality of life evaluation will be evaluated through the strokespecific quality of life scale developed by williams et al. Stroke specific quality of life scale abilitylab home. The stroke specific quality of life scale ssqol is a patientcentered outcome measure intended to provide an assessment of healthrelated quality of life. This study compared the responsiveness and criterionrelated validity of the stroke impact scale sis and strokespecific quality of life scale ssqol for patients after stroke rehabilitation. Psychometric comparisons of the stroke impact scale 3. Pdf assessing the strokespecific quality of life for. The strokespecific quality of life scale ssqol was developed in 1999 as a patientcentered outcome in stroke research to replace the use of more generic quality of life qol measures. We previously developed the stroke and aphasia quality of life scale saqol39 and tested it with people with chronic aphasia. The mean change scores of a group of patients with stroke on these subscales should reach the lower bound of cid ranges of 1. The factors that contribute to a decrease in poststroke quality of life. The ssqol questionnaire has been translated into danish and ger.
Stroke and aphasia quality of life scale39 saqol39. Pdf specific scales for rating quality of life after stroke. Test of reliability and validity of the danish version ssqoldk. May be used with proxies, however research suggests agreement between patient and proxy was best for observable physical domains duncan et al. The short version was developed using data from 141 patients with. Pdf clinical stroke trials are increasingly measuring patientcentered outcomes such as functional status and healthrelated quality of life hrqol find.
Quality of life whoqol bref world health organization. The multiple impacts of stroke have to be assessed for efficient patient management and outcome measurement. French validation of the stroke specific quality of life. Qol scale are developed with help from patients with stroke and include even language impairments. Pdf validation of the strokespecific quality of life. Stroke has an effect on many aspects of quality of life qol and therefore it is important to measure the magnitude of the impact. The aim was to assess the reliability and the validity of the translated version of the stroke specific quality of life ssqol questionnaire in iranian poststroke patients. Assessing the strokespecific quality of life for outcome measurement in stroke rehabilitation. The study used the diagnostic survey method, the questionnaire technique and the standardized research tool. Based on volume of evaluations and good measurement and operational characteristics, the. Each item is answered using 1 of 3 different response sets. If you are unsure about which response to give to a question, the first response you think of is often the best one. Stroke specific quality of life scale rehabmeasures database.
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